Hello to ALL,
Just want to thank you all for your love, support and prayers. I am amazed at how God uses willing people. I am sooo grateful for the opportunity to be here. I have spent the day at the hospital waiting room with the Lauren (18 Mos), Lydia (almost 2), AbigAIL (6 with Downs Synd) and Samuel and Sarah (4). What an adventure.
Please keep us in your prayers. Several kids on the mend from a little bug. Beka had to be put back on oxygen today (30%). She had a pulmonary test done and out of 600 minutes she had Saturation levels at 70-80%. And she may have reflux. Not real sure until they talk to the Drs come tomorrow whether they will be letting her out. Kinda of disappointing about her Sat levels, however, we know that GOD IS IN CONTROL. Please pray as we get reports tomorrow.
Will keep you posted. Sure do love and miss you all.
Take Care,
Becky
UPDATE November 07, 2006 at 11:00 PM CST We have been told that we get to go home either Thursday or Friday! So that has made yesterday and today pretty busy.
Yesterday evening we met with the geneticist and learned more about Beka's chromosomes. She has what is called an "unbalanced translocation of chromosomes 14 and 21" (I think that is the complete name). I told the kids that we need to think of a nickname that would be easier to say.
Beka was kept busy today with various things. She had a vision test and a hearing test. I don't know the results of the vision test. The hearing test showed that she has moderate hearing loss in her right ear, but her left ear is fine. They will repeat the test in about 3 months and another test also, which might give us more information.
On Sunday afternoon the results of a sleep test that she did Thursday night came back, showing that her oxygen levels seem to drop every once in awhile. They have a few different theories as to why this is happening, and expect her to outgrow this in a few months at most. Until then she will be on a small amount of oxygen.
Tomorrow I will be learning how to place Beka's ng tube (her feeding tube that goes in her nose). They have already taught me how to check the placement (to make sure it is still in her stomach), and how to feed her using the tube.
We are so excited that our time here is almost done, and that we can return to a "normal" life again!
